H 1383

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    HB 1383  2026
1A bill to be entitled
2An act relating to public records; amending s.
3499.0295, F.S.; providing an exemption from public
4records requirements certain information contained in
5a public report published by the Department of Health
6relating to experimental treatment outcomes and safety
7signals; providing a statement of public necessity;
8providing a contingent effective date.
9
10Be It Enacted by the Legislature of the State of Florida:
11
12Section 1.        Paragraph (c) of subsection (7) of section
13499.0295, Florida Statutes, as amended by HB 1381, 2026 Regular
14Session, is amended to read:
15499.0295        Experimental treatments for terminal conditions
16and life-threatening rare diseases.—
17(7)
18(c)     The department shall annually publish a public report
19of experimental treatment outcomes and safety signals in the
20aggregate. The health information and proprietary pricing
21information contained in the report is confidential and exempt
22from s. 119.07(1) and s. 24(a), Art. I of the State
23Constitution.
24Section 2.        The Legislature finds that it is a public
25necessity that the health information and proprietary pricing
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 HB 1383  2026
26    information contained in the annual public report of
27    experimental treatment outcomes and safety signals under s.
28    499.0295, Florida Statutes, be made confidential and exempt from
29    s. 119.07(1), Florida Statutes, and s. 24(a), Article I of the
30    State Constitution. The Legislature finds that the release of
31    such information could harm patients with terminal conditions or
32    life-threatening rare diseases by exposing extremely sensitive
33    personal health data. The Legislature further finds that
34    patients who pursue experimental treatments under the Promising
35    Pathways Act have a strong expectation of privacy regarding
36    their medical information, and that the potential harm resulting
37    from disclosure of such information outweighs any public benefit
38    that may be derived from its release.
39Section 3.       This act shall take effect on the same date
40    that HB 1381 or similar legislation takes effect, if such
41    legislation is adopted in the same legislative session or an
42    extension thereof and becomes law.
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