HR 893

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Full Text of HR0893
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					HR0893 - 104th General Assembly
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		HR0893		LRB104 21821 LAW 37569 r
1		HOUSE RESOLUTION
2		    WHEREAS, Ehlers-Danlos Syndrome (EDS) is an inherited
3		condition that affects the connective tissues of the body; and
4		    WHEREAS, Connective tissues provide support in skin,
5		tendons, ligaments, blood vessels, internal organs, and bones;
6		and
7		    WHEREAS, There are 13 types of EDS caused by genetic
8		defects in collagen, one of the major structural components of
9		the body; and
10		    WHEREAS, Symptoms of EDS may include joint hypermobility,
11		loose or unstable joints that dislocate easily, joint pain,
12		skin that bruises easily, digestive problems, dizziness and
13		increased heart rate when standing up, and problems with
14		internal organs; and
15		    WHEREAS, Early and accurate diagnosis can provide the
16		opportunity to create lifesaving medical plans, to improve
17		quality of life, and to access appropriate medical care; and
18		    WHEREAS, Eighty percent of people with EDS also have
19		postural orthostatic tachycardia syndrome (POTS); and
		HR0893	- 2 -	LRB104 21821 LAW 37569 r
1		    WHEREAS, POTS causes an individual's heart rate to
2		increase quickly after getting up from sitting or lying down,
3		causing symptoms such as dizziness or light-headedness,
4		fainting or almost fainting, heart palpitations, chest pain,
5		shortness of breath, and shaking or sweating; and
6		    WHEREAS, Those suffering from POTS may also have
7		additional medical problems, including digestion problems such
8		as feeling or being sick, diarrhea, constipation, bloating and
9		stomach pain, headaches and problems with sight such as
10		blurred vision or tunnel vision, hands and feet looking
11		purple, weakness and extreme fatigue, and problems with
12		thinking, memory, and concentration; and
13		    WHEREAS, It is estimated that the prevalence of all types
14		of EDS combined affect at least 1 in 500 people worldwide, and
15		recent research indicates that it is likely underdiagnosed;
16		and
17		    WHEREAS, EDS may significantly decrease both quantity and
18		quality of life for those affected; and
19		    WHEREAS, Currently, there is no treatment and no known
20		cure for EDS; however, further medical research and awareness
21		could bring hope for those with EDS; and
		HR0893	- 3 -	LRB104 21821 LAW 37569 r
1		    WHEREAS, A network of EDS support groups can help connect
2		those managing life with this disease; additionally, they can
3		help inform the health care community and the public;
4		therefore, be it
5		    RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE
6		HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that
7		we declare May 2026 as Ehlers-Danlos Syndrome (EDS) Awareness
8		Month in honor of those surviving daily with EDS, and we
9		encourage scientific research and funding towards finding a
10		cure.