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CYSTIC FIBROSIS FOUNDATION

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44 federal lobbying filings, 2023 to 2026.

CYSTIC FIBROSIS FOUNDATION is a client on 44 federal lobbying filings, 2023 to 2026, reporting $480K across them. non-profit organization Based in Maryland.

An LDA filing reports one registrant’s income from one client for everything they worked that quarter, so a total here is the sum of whole filings and never a price for one issue or one bill.

Firms

3 it has hired, by filings.

RegistrantFilingsReported
CYSTIC FIBROSIS FOUNDATION15—
THORN RUN PARTNERS15$480K
TURNER & GOSS LLP14—

By year

Filings and what they reported, newest year first.

YearFilingsIncomeExpenses
20266$60K$520K
202512$120K$760K
202413$120K$1.3M
202313$180K$780K

Issues

The LDA issue codes the filings were filed under.

CodeIssueFilings
HCRHealth Issues30
MMMMedicare/Medicaid30
MEDMedical/Disease Research/Clinical Labs21
BUDBudget/Appropriations15
INSInsurance15
GOVGovernment Issues4
TAXTaxation/Internal Revenue Code3
PHAPharmacy1

Bills

The bills the filings name, by how many name them.

BillTitleFilings
S. 864HELP Copays Act6
H.R. 1An act to provide for reconciliation pursuant to title II of H. Con. Res. 14.5
H.R. 1262Mikaela Naylon Give Kids a Chance Act4
H.R. 1509Accelerating Kids’ Access to Care Act of 20254
H.R. 247Health Care Affordability Act of 20254
H.R. 2902SOAR Act of 20254
S. 1406SOAR Act of 20254
S. 46Health Care Affordability Act of 20254
S. 752Accelerating Kids’ Access to Care Act4
H.R. 2079Insurance Fraud Accountability Act3
H.R. 4317PBM Reform Act of 20253
H.R. 6423HELP Copays Act3
S. 976Insurance Fraud Accountability Act3
S.Res. 198A resolution expressing the sense of the Senate that the Secretary of Health and Human Services should withdr…3
H.R. 142Regulations from the Executive in Need of Scrutiny Act of 20252
H.R. 5509Safe Step Act2
H.R. 7352PASTEUR Act of 20262
H.R. 7879SUPER BUGS Act of 20262
H.R. 1515GOOD Act1
H.R. 6837To amend the Employee Retirement Income Security Act of 1974 to ensure that pharmacy benefit managers are con…1
H.R. 77Midnight Rules Relief Act1
H.R. 7895PBM Kickback Prohibition Act1
S. 164Midnight Rules Relief Act of 20251
S. 252GOOD Act1
S. 2903Safe Step Act1

Lobbyists

Named on the filings.

LobbyistClientsFilings
CATHERINE FINLEY115
DAVID ELIN115
MARY DWIGHT115
CASSIDY PELKEY113
ASHLEIGH THARP18
SCOTT SHERWOOD13
CHARLES WILLIAMS12
ELIZABETH GOSS12

Filings

The documents themselves, on the Senate’s Lobbying Disclosure site, newest first.

ClientRegistrantPeriodReportedPosted
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2026 second_quarter$270KJul 20, 2026
CYSTIC FIBROSIS FOUNDATIONTHORN RUN PARTNERS2026 second_quarter$30KJul 20, 2026
CYSTIC FIBROSIS FOUNDATIONTURNER & GOSS LLP2026 second_quarter—Jul 19, 2026
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2026 first_quarter$250KApr 20, 2026
CYSTIC FIBROSIS FOUNDATIONTURNER & GOSS LLP2026 first_quarter—Apr 19, 2026
CYSTIC FIBROSIS FOUNDATIONTHORN RUN PARTNERS2026 first_quarter$30KApr 18, 2026
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2025 fourth_quarter$140KJan 21, 2026
CYSTIC FIBROSIS FOUNDATIONTHORN RUN PARTNERS2025 fourth_quarter$30KJan 19, 2026
CYSTIC FIBROSIS FOUNDATIONTURNER & GOSS LLP2025 fourth_quarter—Jan 19, 2026
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2025 third_quarter$120KOct 20, 2025
CYSTIC FIBROSIS FOUNDATIONTHORN RUN PARTNERS2025 third_quarter$30KOct 20, 2025
CYSTIC FIBROSIS FOUNDATIONTURNER & GOSS LLP2025 third_quarter—Oct 16, 2025
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2025 second_quarter$300KJul 21, 2025
CYSTIC FIBROSIS FOUNDATIONTURNER & GOSS LLP2025 second_quarter—Jul 17, 2025
CYSTIC FIBROSIS FOUNDATIONTHORN RUN PARTNERS2025 second_quarter$30KJul 16, 2025
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2025 first_quarter$200KApr 21, 2025
CYSTIC FIBROSIS FOUNDATIONTHORN RUN PARTNERS2025 first_quarter$30KApr 17, 2025
CYSTIC FIBROSIS FOUNDATIONTURNER & GOSS LLP2025 first_quarter—Apr 16, 2025
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2024 fourth_quarter$120KJan 21, 2025
CYSTIC FIBROSIS FOUNDATIONTURNER & GOSS LLP2024 fourth_quarter—Jan 20, 2025
CYSTIC FIBROSIS FOUNDATIONTHORN RUN PARTNERS2024 fourth_quarter$30KJan 19, 2025
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2024 third_quarter$100KOct 21, 2024
CYSTIC FIBROSIS FOUNDATIONTHORN RUN PARTNERS2024 third_quarter$30KOct 17, 2024
CYSTIC FIBROSIS FOUNDATIONTURNER & GOSS LLP2024 third_quarter—Oct 17, 2024
CYSTIC FIBROSIS FOUNDATIONCYSTIC FIBROSIS FOUNDATION2024 second_quarter$300KJul 23, 2024